A few weeks ago when going to the bathroom I managed to ruin my hand controller by getting it wet. Luckily we had it insured.
When it got damaged I wasnt able to turn the stimulator up or down, on or off so spent two nights propped up in bed and I couldnt sleep properly as when you lay down the stimulation gets really strong and intense.
The company who had fitted my SCS sent out a new one as soon as possible and were amazing, so too were my insurance company so a big big thank you to them!
I now leave my controller somewhere safe.
Would love to hear an update, as most blogs for SCS's were placed 2+ years ago and after 1 year most stopped updating. Those of us just starting the healing process need some encouragement.
ReplyDeleteHow are you doing?
My SCS implant was on May 16th, had my 3 week check yesterday. It's been up and down and right now on a steady down. I'm not really hurting much from the SCS surgery. Just still sore but my "normal pain" has returned like a raging bull and my stimulator is not helping. I think I will call for therapy appointment next week. I cannot let this get me down. My rep put 3 new programs yesterday but none are reaching the area. I'm just to weepy to get in touch with him right now.
here is my blog address if you want to follow or give some advise. Please stop by www.spinalcordstimulatorjourney.blogspot.com
How are you feeling now? I just finished the trial with the SCS and not sure if I want to do the actual surgery. Thanks.
DeleteHi Tiggersue, I have recently had the SCS procedure and have a couple of short questions about safety and insurance. I know you have not posted your contact details. Is it Ok if I post my email address on this site so you can get back to me?
ReplyDeleteBest regards, Jess, UK
That's the information i was looking for. Thanks for your information and good knowledge and valuable points. Hope to see the next update soon.
ReplyDeleteHi everyone, apologies for not updating my blog, I will start updating as soon as possible. So pleased that I can help other people by putting my experiences on here and hope that I can offer a good insight to what it is like to have a spinal cord stimulator fitted, like any procedure they come with risks of having worse pain, but even if it helps with taking away some even a little of the horrible pain it's worth doing! Thank you again Sue. X😊
DeleteI went to the Dr last week and he told me that my next option will be the SCS. The SCS is not for my back it's for my left arm. They are saying that I have COMPLEX REGIONAL PAIN SYNDROME (CRPS). I have been doing a lot of research on the SCS. What I have seen and the things that I have been reading It's scaring me so much. I have so many questions like : Is the SCS worth it considering all the other pain that it has caused?
ReplyDeleteHi Azalea, I was wondering if you had a SCS put in? And how are you getting on? X
DeleteHi all, I just wanted to say that I've had my SCS implant since 2009. My unit is a Boston Scientific dual lead unit. In 1999 I started using an external spinal cord simulator which really didn't help at all in relieving any of my pain. In 2008 when my doctor suggested I have a stimulator implanted, I wasn't very happy with that idea so, I had explained to him that in the past whenever I used the external unit it never really helped at all. My doctor insisted that the newer units worked much better than the older units because they had a wide range of adjustments that just weren't available for the old external type. He also said that the technology is far more superior than what was available in 1999. Out of desperation, to get rid of the pain, I opted to have the implant done. Today, I very rarely use the unit because it just does not help.
ReplyDeleteI would suggest to anybody that is thinking of having the procedure done, to make sure that you are totally satisfied with the results of the trial unit before you commit to the permanent one. On the bright side, even if the unit only produces a 20% reduction of pain, that may just be enough to help you avoid the use of taking addition pain medications.
Presently, my neurologist is suggesting that I try a drug pump. In the 90's I had 2 trial pain pumps, however, due to improper placement of the catheter, (so they say), my relief was miniscule. The doctors also couldn't get the dosing correct so I functioned like a vomiting zombie during the trials. When the pump trial was over, I never entertained the thought or idea of using a drug pump again. Well, here we are in Aug of 2013 and I'm debating whether or not to have the drug pump put in my body. I understand that by using the pump you only need about 10% of what you are presently taking orally.
Does anyone out there have any comments or suggestions for me to think about if I opt for a pump? Thanks all��
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ReplyDeleteNice to see your valuable post, To get proper treatment for spinal cord injury by stem cells and its very easy to get cured through the support of therapy.
ReplyDelete