Well where have those six years gone!! Apologies for not adding to my blog! I am managing ok still using my SCS. charging lately has been a bit hit and miss as apparently the charging box in your tummy can shift making it a little hard to place the charger in the right position outside, meaning that I sometimes have to charge it for a while then do it again sometime later until it is fully charged. I Also noticed that it gets quite hot against my belly for some reason, this is why your not meant to charge up in bed.
As I have mentioned before the stimulator only works for my nerve pain and sciatica going down into my legs and not for my lower back spinal stenosis. I have failed back surgery syndrome and have been in chronic pain now for eighteen years.
At present I still take lots of medication: Tramadol SR. 50mg twice a day, paracetamol and now have been prescribed nortryptlene two at night for sleep and to help with constant migraines, they seem to be helping with the migraines and I don't get a dry mouth with these like I did with Amitryptline 150mg!
I have good days and bad days and am looking into fibromyalgia as I have many symptoms of this chronic condition,apparently it is very hard to diagnose.
I have been on a chronic pain management course which I found very helpful as they cover an awful lot of aspects on the course.
I also go to tai chi once a week when able which helps me relax and put into practice breathing.
I have joined a local chronic pain group which is run by a lovely lady and her mum who also suffer chronic pain, I have met some truly amazing people there once every month when able to go.
Would love to hear from people who have similar conditions or if they need help or advice, I am not medically trained and can only really advise and speak about my own experiences but would like to help people. As someone wrote I haven't put down my email address so here it is for anyone who wishes to contact me : suesanfan@yahoo.com
Thank you Sue. X
